{Thoughts on Thursday} July 2016

by Leighann on July 28, 2016

Each Thursday I am posing a type 1 diabetes-related question on Facebook. Leave a comment with your answers here and also click through to Facebook to see how others answered.

Thoughts DiagnosisWhat’s the one thing you know now that you wish you had known when your child was diagnosed?

My answer: This is a hard one because there isn’t just one thing that I know now that I wish I had known then. Since Q was diagnosed so young we had to micromanage a lot, especially at dance classes and sports practices. I always envied the parents who could just drop their kids off and go run errands. Now Q is very independent with her care (and at an age that she doesn’t want a parent around all the time!). So I guess I wish I had known that the intensity with which we had to care for her and manage her diabetes would eventually let up.

Also, I wrote the book Kids First, Diabetes Second to share all that I have learned over the years so that parents, especially of newly diagnosed kids, wouldn’t have to figure out everything for themselves.

See how other d-parents answered the question “What’s the one thing you know now that you wish you had known when your child was diagnosed?” on Facebook.

Thoughts Diabetes HackWhat’s the best diabetes hack you’ve discovered?

My answer: I think I have two hacks.

The first is that Smarties have the same ingredient as glucose tablets and that Smarties makes bigger rolls. Smarties are cheaper…and a lot more fun! (Read the posts Forbidden Fruit or Good Hypo Treatment? and How Low Can You Go? and Giant…No…MEGA Smarties.)

The second is using Opsite Flexifix to extend the life of the adhesive on Q’s CGM sensors. I just ordered a new roll, I think the first roll lasted us FOUR years! (Read the post Opsite Flexifix for a tutorial on how to use it.)

See how other d-parents answered the question “What’s the best diabetes hack you’ve discovered?” on Facebook.

Thoughts BolusWhat’s the food that you can never successfully bolus for that always results in a high or low blood sugar later on?

My answer: Q loves going to Panda Express and although they are great about having the nutrition information available and we always bolus for the carbs that she consumes, she’s always crazy high for hours afterwards. At our last check up the endocrinologist suggested we try an extended bolus next time.

See how other d-parents answered the question “What’s the food that you can never successfully bolus for that always results in a high or low blood sugar later on?” on Facebook.

Thoughts Cell PhoneAt what age did your d-kid get a cell phone? Would you have gotten the phone at that age if it wasn’t for diabetes?

My answer: Q got her own cell phone the summer after 5th grade. That summer she 100% self-managed at a week long day camp and I wanted her to be able to get in touch with us. Also a bonus that we could see her CGM on our phones (though I don’t routinely look at her graph).

I might have gotten her a simpler phone (not an iPhone) if she didn’t have diabetes, but it’s so nice for her to be able to text us and send us photos to help carb count, etc. And in middle school she texts the school nurse when she needs her which eliminates having to ask the teacher to get the nurse. We have it in her 504 plan that she can use her phone for diabetes-related calls and texts during the school day.

See how other d-parents answered the question “At what age did your d-kid get a cell phone?” on Facebook.

Please remember that I never give medical advice. Ask your endocrinologist or pediatrician for advice about your own child. Make your own informed decisions for your own child.

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