{D-Blog Week} Letters I Won’t Write

by Leighann on May 10, 2011

Diabetes Blog Week 2011

Today is letter writing day and there are so many letters I could write.

I could write a letter to Apple telling them that I absolutely hate the Marimba ring tone because it jolts me from sleep at 2:00 am when I have to do an overnight BG check.

I could write a letter to the substitute school nurse telling her that I am angry that she added half a unit of insulin at lunch the other day instead of subtracting for outdoor recess, thus giving Q an entire unit of insulin too much causing a low at the end of the school day.*

I could write a letter to the State of Illinois telling legislators that they don’t realize that by taking away our current health insurance they are forcing us to choose between an HMO plan which has NO local providers under contract or an open access plan which will increase our out-of-pocket costs dramatically. Changing plans and providers can affect continuity of care, something very key to treating diabetes. And either plan may decide that my daughter’s insulin pump is not a medical necessity and deny coverage.**

I could write a letter to the American Diabetes Association (and other diabetes organizations who raise money) telling them to stop using the word suffer in all of their campaign literature. Every time we participate in a walk or gala I change “suffers from diabetes” to “lives with diabetes.” My daughter does not suffer. She does many things despite having diabetes, but she does not suffer. Let’s use empowering language, not language that evokes pity.***

Today is letter writing day and there are so many letters I will never write.

I will never write a letter to diabetes telling it that I hate it. Hating it gives it power over me and my family that I don’t want it to have. It is what it is, but it does not own us.

Today is letter writing day and there is one letter I will write.

Dear DOC,

Thank you.

Best,

Leighann

This post is on the topic “Letter Writing Day” as part of the Diabetes Blog Week 2011. For more participating blogs, visit Bitter-Sweet.

*I already wrote in to show the sub school nurse her mistake and then went in at lunch the next day to make sure she understood.

**I already wrote nine letters to the legislators on the committee as well as to the governor.

***And while you are at it, stop sending me nickels. If you kept all the nickels you mailed out, you’d probably have a lot of money.

Further Reading

Diabetes Blog Week 2010

Diabetes Blog Week 2011

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{ 4 comments… read them below or add one }

1 Kim May 11, 2011 at 7:03 am

Agreed on the “pity” and nickel points!

Reply

2 Penny May 11, 2011 at 8:23 am

Agreed, agreed and agreed. All great points and letters to not write. And don’t get me started about the nickels!!! Who the heck dreamed up that campaign???

Reply

3 Jer May 11, 2011 at 9:54 am

Agreed to all points, especially the “suffer” comment. An organization running such empowering camps for kids but yet using such diminishing language is frustrating to no end.

Reply

4 Angela (Toucan Scraps) May 12, 2011 at 5:21 am

you write a lot of letters. And I quiet agree with not hating diabetes because you don’t want to give it that kind of control.

Reply

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