Your use of the term “consuming” really does depict what living with D is. It IS consuming. Plain and simple.

I clearly remember Caleb’s doctor at diagnosis saying it was good for him to get it so early because it will be easier for him to adapt. But he also kindof smirked and looked at the other side of it saying, “although if you are diagnosed later in life then you have fewer years of its effects”. As is often the case, I think this was just another attempt of someone trying to give us something positive to hold on to at such a devastating time, when really, there is nothing positive at all. Like that mom said, this is difficult. It’s counter-intuitive for people to think that THAT is a helpful thing to say. But it really is.

Despite it all, you are providing Claire such a great childhood filled with sports, cookies at Sea World, ice cream on D-day and sleepovers! You are a great mom and a great D mom, Nan!

I was at an appointment with our other child at our local pediatrician. I told her that Q got a pump. She knew about pumps and their advantages, but had never heard of the OmniPod and had no idea that there were tubeless pumps with a remote controller.

Though I’m not knocking her for one second because she caught the diabetes early and also caught our son’s heart condition. I just agree that pediatricians sometimes don’t know much outside their basic care.

You two reminded me that when Q was hospitalized over night about a year ago (high BG’s, ketones, and then she threw up), I did all the carb counting and gave her insulin with our own pen. I didn’t think of it at the time, but I just wanted to keep on our schedule and use our log book. Plus she was only four and much more comfortable with me giving her the injection than some stranger. Especially after it took THREE tries to put her IV in. I have never been so mad!

Mike

I am in shock about the nurse giving C sugar water!!!! That’s unbelievable and so sad! If the people in the medical field do something like that when they should know better, what chance do we have with the general public!

I’m with you on the CGM. I would love for Tristan to have one but right now, I don’t think that he would accept that. I also hate to think of another site going in him.