Q: I’m hungry and I can’t walk.
Me: Are your legs wobbly?
Q: No, they’re just too bendy.
Her blood glucose was 80, so she was in fact going low. Her normal sign is being extremely hungry. I need to eat NOW hungry.
My daughter and I were sitting together in the recliner. She sat upright, looked to me and said, “I need a pump.”
This came as news to me because she has had mixed feelings about pumping. At five the unknown is scary. Will it hurt? For how long? A second or a minute? Where can I wear it? What if I am swimming in the bathtub and I rollover; will I bump it?
So after her proclamation she told me why.
I was just having a daydream and the injection that daddy just gave me in the leg suddenly split my leg open. And the injection was making me bleed everywhere. It was terrible. So I need to get my pump so that I don’t have injections anymore.
A little imagination goes a long way. But if that’s what it takes to get her on board, well okay then.
This comes just a day or two after she told me she doesn’t want a pump. I did what any good mother could and played it up. I said, “Oh, did I tell you about this little boy that’s exactly your age? His name is Caleb and he’s diabetic. Guess what? He has the exact pump you are going to get. And did you know that he can eat whenever he wants? And did you know he can even go swimming with it on?”
I grabbed the laptop and showed her this video:
Thank goodness for Lorraine who is documenting her own family’s struggle with diabetes.
I am 99% sure of our decision to change from multiple daily injections to the insulin pump. I am 99% sure about the pump we chose.
I asked the d-moms (that’s what we call each other) a few more questions about it and asked if pumping will make our lives more easy or more difficult. Turns out that it’s a lot of work (I knew it would be as we learned a completely new system), but the reward is tighter control (and better long term health).
I don’t know that we will ever be able to say with 100% certainty that any of the decisions we make about her care are the absolute best. I don’t think anyone can. We just have to do what’s best given the information we have and the resources available to us.
We head to St. Louis this week for the first insulin pump clinic.
She is suddenly all for the pump, though I doubt it will be completely stress-free for her as she learns the new system and feels the insertion and what it’s like to have a device attached to her 24 hours a day.
When she came home from school the other day she grabbed paper and markers and asked to see a picture of the OmniPod and PDM. I grabbed the sample and she got to work.
Next thing I know she has drawn, colored, and cut them out. She attached the “pod” to her arm and handed me the “PDM.”
I said, “Looks like we are at a birthday party. Would you like some cake? You would? Do you need an injection for that? Nope. Let me punch in the carbs. Wow that was easy.”
Many times that evening she ran through similar scenarios, naming what she was going to eat and entering the carbs in the PDM, complete with sound effects.
She even wore it to dance class and was showing everyone her new pump.
Granted they probably had no idea what she was talking about because most of the adults and kids just seemed to smile and nod.
But I take this as a step in the right direction and an indication that maybe she is ready to transition to the pump.
Take a quick read of the post “Bested by a Can of Tomato Soup.” If you want to know what it’s like to figure out how many carbs are in a meal, this is a humorous, but realistic account. Add in a child who never knows how hungry she’ll be and you’ll see why I rarely sit down to eat my own meal. I’m too busy doing math!
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