{Diabetes Awareness Month} Thought 18

by Leighann on November 18, 2016

Diabetes Awareness Month

“Every school that receives federal funding must allow a child with diabetes a 504 plan. This includes private schools that get even a dime of funding.”

Every day during Diabetes Awareness Month, I will share a fact, tip, or thought on Twitter, Facebook, Pinterest, and Instagram.

Please remember that I never give medical advice. Ask your endocrinologist or pediatrician for advice about your own child. Make your own informed decisions for your own child.

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{ 1 comment… read it below or add one }

1 Debi November 18, 2016 at 10:32 am

In 2012, My daughter was 10 years old and had been in the same [private Mennonite] School for 6 years when she suffered a completely unexpected and severe case of DKA, which is how she was diagnosed.
Though a private school, they took what THEY might consider only “a dime” of Federal Funding (in the form of district school buses and a district Nurse who visited once a month).

They flatly refused to hire a nurse or train any member of the staff to help with her Diabetes, including anyone who could inject her with Glucagon, if necessary – their compassion consisted of a 100% hands-off approach.

Everything was so new to us at that time, and our emotions (my husband and myself) were overtaxed during the beginning stages of our daughter’s Dx. I didn’t know enough to fight them, and [with 2 Autoimmune Diseases myself] I didn’t have the energy, either.

We had to take her out of the school she loved with all the friends she loved since Kindergarten. The only other thing etched in my mind from that confusing & upsetting period in our lives, beyond the ambulance, the helicopter transfer, the questions we asked her at the Doctor’s behest to “make sure she didn’t slip into a coma” and the complete helplessness that comes with a T1D diagnosis of one’s child, was watching my daughter cry and cry because she had to leave her friends and go to a new school…. it was like a punch in the heart 🙁

She is a teenager now, able to take care of her pump, her carbs, her highs & lows like a trooper! We celebrate her “Dia-versaries” and her “Pump-aversaries”; there is less stress and so much pride. But I do worry about her weight gain (will have to peruse your blog for info helpful on this subject!)

Thank you for this reminder and all your other Diabetes Awareness Month reminders! They are very much appreciated! 🙂 You wear your Super D-Mom Cape very well <3
~Debi

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