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When I saw the trailer for the movie DxOne, I knew I wanted to know more about the film and the people behind it. Although Dan Masucci has made many films, this one particular project is near to his heart. Dan is the parent of a child with diabetes, just like you and me. His son Nick, who has type 1 diabetes, plays the role of Travis in the film.
I have to say that the film blew me away, not only for the content, but also it’s production value. It is a really well made film.
As I watched it, I don’t think I got more than a minute into it before my eyes welled up with tears. Dan could be telling your story or mine. And that’s what makes this film so powerful for all of us. Because sometimes it’s difficult to get across to others what family life with diabetes is truly like. I think when you see this film, you will want to share it with others as a means of educating and advocating.
While I may have been emotional during my viewing, I also laughed at one particular scene because the scenario has played out in our house before. The child is acting up and he says, “It’s not my stupid BG.” To which the mom replies, “Well you’d better hope it is!” Classic.
I had the opportunity to ask Dan a few questions about his family and the movie:
At what age was your son Nick diagnosed with type 1 diabetes and what were his symptoms?
My son Nicholas was diagnosed with Type 1 Diabetes when he was eleven, nearly three years ago. We were lucky because Nick only showed symptoms for about a week. During that week, I noticed that he was looking much thinner and I was passing him in the middle of the night to use the bathroom. Nick’s thirst was unquenchable. I think we went through three gallons of milk in five days.
Tell me a little about Nick.
Nick has an excellent sense of humor. He is an honor student and very talented drummer. Nick has been playing his instrument for more than seven years. He is active in Drama Club and a member of Science Club and loves writing, reading, and playing Dungeons & Dragons.
What is the hardest part about being a parent of a child with diabetes?
The hardest part about being a T1 parent is the constant worrying. You worry about how your child is all the time. You worry about whether or not they are taking care of themselves when they are not with you. You worry before you go to bed, and you worry when you wake up. The threat of an extreme low is frightening and the fear of long term damage of high blood glucose levels will keep you up at night. You worry about the medical expenses and you worry about whether they will be able to afford the expense when they are on their own. You worry about the future and whether or not they will be responsible about caring for their T1. I could go on and on, as you know, but you get the idea. And if you are a T1 parent, you know exactly what I’m talking about and this is on top of all of the normal things parents worry about.
What would your son say is the hardest part about being diabetic?
I asked him this very question. He said that it is a difficult question to answer… Everything maybe? The fact that T1 doesn’t go away? The fact that he has to carry a bag with his supplies with him 24/7- supplies that he needs to live. The fact that while everyone else sits down to eat, he has to hurt himself by testing his blood glucose and prepare his insulin delivery. The fact that T1 demands his attention all day, everyday. The knowledge that he will most likely die with diabetes and the fear that he may die because of it.
How do you think diabetes affects your other child?
Diabetes takes so much and time not the least. I have to devote more time with Nick, helping him care for T1 and sometimes his emotions regarding it. This takes considerable time away from my four year old but I try to find balance in our household. It is a juggling act at times.
Have there been any positive affects on your child, yourself, or your family?
We have a much greater appreciation for how amazing the human body it is and how lucky people should feel when they function normally. We are grateful everyday that Nick is still with us. The news could have been worse. As for positive affects… We’re only two and a half years into this. Ask me this question again in another ten years = )
You are an independent film maker. What made you decide to write and produce a movie about type 1 diabetes?
My first thought about making a film on this subject was that it might be cathartic. I also thought making a film like this would be helpful for people coping with this disease. However, after Nick’s diagnosis, I was derailed emotionally for nearly two years before I sat down to write the film.
Where will this film be screened? How will you make it available to people who want to view it?
I’m still in post-production but I’m looking into platforms to make the film available. I’m hoping to have news about that in the near future. Right now, anyone interested, may follow the film at www.dxonediabetes.com and www.facebook.com/dxonefilm .
In what ways do you hope this will raise awareness about type 1 diabetes and how it affects family life?
It is my hope that DxONE will help people understand the world of difference between Type 1 and Type 2 Diabetes and just how dangerous a disease it is. I’m hoping that people can share it with family and friends who just don’t “get” what T1 one is and the toll it takes on the person diagnosed and their loved ones. I hope that DxONE will help make this “invisible” disease visible.
Thank you, Dan, for giving us some insight into your family’s life and about your inspiration for this wonderful film. I hope that all of you parents of T1 kids have an opportunity to see the film and show it to loved ones who may need a better understanding and appreciation for the life of a child with type 1.
I think you’ll also like this behind the scenes look at the film. Nick has to drink milk in one of the scenes, and we all know our d-kids can’t just chug without getting insulin!
Behind the Scenes: Milk
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