I sat down and pounded out a draft the other day about the possibility of a cure. I realized as I proofread that I already had a similar draft sitting in queue and even gave it an almost identical title. So this week I present two very similar posts, triggered by two different prompts. Today I react to a post on Diabetes Mine (this post is basically the comment I left). You’ll have to return Thursday for the second.
I have not read Diabetes Rising by Dan Hurley, though I did hear him on NPR and have read several guest posts, reviews, and interviews.
Amy Tenderich’s recent post Rethinking a ‘Cure’ for Diabetes? on Diabetes Mine was a guest post by Hurley. Even though I have not read the book, his guest post struck me on several levels.
My thoughts on this are many and I won’t be able to formulate them coherently, I’m afraid.
1. I NEVER talk to my daughter about a cure. NEVER. Why get hopes up in a five-year-old for something that may or may not happen any time soon. Our reality is that she has diabetes and needs insulin. I would be doing her a major disservice to give her false hopes that she could go off insulin any time soon.
That being said, of course we would welcome a cure if and when it comes along.
2. I agree that I don’t want another single child (or parent) to have to go through this. Of course I wish there was a way to prevent new cases. However, finding prevention does nothing to help my child who already has diabetes.
Though if there was a way to prevent my other child from acquiring it, I would.
3. I always reassure parents of newly diagnosed children that they did nothing to cause this. We have enough guilt already.
I often say when speaking about parenting choices that we have to make the best decisions based on the knowledge and ability we have AT THE TIME.
When our daughter was diagnosed, my husband and I both had the same thought: What if the BPA in the baby bottles we used caused this? (BPA is a known endocrine disruptor.) But when she was born we didn’t have the information that BPA could be released when a bottle is heated.
And if cow’s milk-based formula is to blame, then does the blame shift to me for giving my child formula? I was physically unable to produce enough milk and had to supplement with formula, eventually switching to formula only. I did much better with my second child, but still fell very short.
If we do find that there was something that we could have done to prevent it, I hope that us parents can reconcile this in our minds and hearts and realize that we just didn’t know and did not harm our children intentionally.
4. At this point I am all for better management techniques and technologies. Of course I want a cure, but until then, I want to make it as easy as possible for my daughter to live as normal a life as she can given what we know NOW and the resources available to us.