This past weekend we had our local Step Out to Fight Diabetes walk. Though last year was the first year that we were walking on behalf of our own child, we have participated in this walk several times.
It was good for my daughter to see the fourth grader at her school and a girl from the dance studio. It was good for me to talk with their moms.
Our local walk raised over $55,000 dollars. Part of the proceeds go toward scholarships for children to attend Camp Granada, an overnight camp for diabetic children eight and over.
Since my daughter has a strong super hero persona, and because she is heroic, our team wears capes to show our support for her.
The walk was a mile, two laps around the park. But my daughter, her friend and her friend’s brother kept racing ahead and then running back to me and the other mom. They definitely put in more than a mile.
After the walk, the other girl tested her BG and was low: 59. I wasn’t going to check my daughter because I had given her a snack just before the walk began. Seeing the other girl’s number I checked my daughter. She was at 66. Juice box coming up!
I chuckled at the irony that they went low at a diabetic event.
My daughter and I were in the rest room after school. She and another girl were at the sinks. My daughter looked over at the girl’s wrist and said, “I like your bracelet. Look at all the colors. It’s fan-TAS-tic!”
As I reached down to snap her pants I lifted her shirt. The other girl, seeing the OmniPod on my daughter’s tummy asked what it was.
My daughter explained, “It’s a pump. Do you know what a pump does? It gives you medicine. I’m diabetic and I need insulin. But it’s pumping saline this week. Saline is a type of water.”
I was taken aback by her matter-of-fact-ness and with the accuracy and maturity of her explanation.
Over and over throughout our saline trial she showed off her pump. She wanted to show anyone and everyone.
On the last day of our trial, I was at school during lunchtime. The substitute nurse, who must not be familiar with how the OmniPod works, was asking me about placement, rotating sites, and getting kinks in the tubing. I said, “What tubing? The OmniPod doesn’t have tubing.”
I motioned my daughter over and asked her to reveal her tummy. My daughter asked the nurse what she thought of it, to which the nurse replied, “It’s magical!”
The following day as I packed up the PDM and our records from the week, my daughter asked if we could include drawings with our votes: yes or no.
On a little slip of paper I wrote my name. I drew a syringe next to the word no and a pod next to the word yes.
She drew this picture (I edited out her name):
At the top it’s a heart, the pod, another heart, and the PDM. She even turned her V into a heart.
I wonder what the nurses said when they pulled out our paperwork and saw this vote of confidence from my five-year-old.
Now the waiting game begins. After the nurses receive our package they will grade my paperwork for the week. If we pass, they will write a letter of medical necessity and contact OmniPod. OmniPod will submit the paperwork to our insurance. The insurance will approve or deny it, assuming they have all the documentation they need and it actually gets to the right person, she can approve or deny within an hour. She will call OmniPod who will set things up with a medical supply company. We will receive the PDM and our first supply of pods in the mail. Once we have these physically in hand, we can call St. Louis to make an appointment for pump training. They only do pump training once a month on a Thursday. It could be the end of October (hope it doesn’t interfere with her class sock hop party at school) or it could be November (wouldn’t it be nice to eat more freely at Thanksgiving?). Hopefully it’s not as late as December. Now that we’ve tried pumping (doing double duty with our daily multiple injections), we want to start ASAP.
Updated to add: We are having issues because we don’t know who is going to supply the PDM and pods cheaper: Edgepark who is the preferred provider contracted with our insurance company, or Insulet, the actual manufacturer of OmniPod. Insulet’s numbers appear to be cheaper even though they are not our preferred provider. So what could have been quick has already been delayed a week as the insurance company looks to see who actually has a better contracted price.
Here’s a video explaining diabetes in terms children can understand:
What’s interesting is that they refer to a diabetic child in the video as a super hero and illustrate him with a cape. Brave, just like my daughter!
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