{Our Story} Best A1c, I Think Ever. Huzzah!

by Leighann on September 4, 2013

We had our quarterly endo appointment last week and my biggest question was how to handle the weird morning schedule at school this year (more on that to come!).

I’m always kind of meh when it comes to Q’s A1c. I mean it is what it is. It doesn’t matter how hard I try or how many sleepless nights I spend trying to keep her in range or how many times we test a day, it never seems to budge. It fluctuates between being at the “top of acceptable” to “higher than I want.”

(And no, it’s really not important what those actual numbers are because every PWD may have a different goal.)

You see, I’m on top of things. I’m really on top of things. I read and research and find ways to get Q the best technology on the market that we can afford. Yet great A1c’s allude us.

I’m not upset by it anymore. It’s not a grade. It’s not an assessment of my parenting skills. It’s not a competitive sport.

But it still irritates me that it won’t budge.

And I usually come away from endo appointments not knowing where we can do better, because we are already doing everything that we can.

(And by the way, maybe you’ll find solace in knowing that a d-mom who appears as on top of things as I am can’t even procure a “good” A1c for her child!)

So at our appointment last week I didn’t hold my breath as the A1c machine made the zzzhuuu zzzhuuu noise as it internally did it’s magic on that drop of blood. I grabbed my phone as I saw on the screen that it was almost done to snap a photo so that I could remember what it was.

And to my surprise it was the lowest A1c I think we’ve ever had.

You’d think I would be overjoyed, but honestly I can’t tell you what was different in the last three months that we haven’t been doing for years.* Five years with diabetes, almost four years with an insulin pump, almost a year and a half with a continuous glucose monitor. We’re still checking blood sugars a gazillion times a day. We’re still reacting to low and high alarms. She still has blood sugars all over the map.

It makes me wonder: How can I replicate this A1c if I don’t know what we are doing right?

I guess we’ll just keep chugging along, doing what we can with the resources we have, and hope for the best the next time the A1c rolls around.

If you want a recommendation on the appropriate A1c for your child, the American Diabetes Association has an opinion.

*If you remember from your college stats class, correlation is not causation. I don’t know if this is the change that made the difference and I really have no way of knowing, but we did start using the new OmniPods right after her last A1c. What I have noticed is that lately she has had less drastic post breakfast spikes (the bane of my existence!) and with the new pods she has had less post-pod change highs. I don’t know if there is something different about the new pods that is helping with pod changes or not. This isn’t an endorsement for OmniPod or in any way medical advice or a testimonial that it will lower A1c’s. It’s just the only observation that I have been able to make that correlates with (not necessarily caused) the lower A1c.

And Another Thing…

American Diabetes Association’s (ADA): Standards of Medical Care in Diabetes—2013

More posts about the continuous glucose monitor

Related Posts Plugin for WordPress, Blogger...

{ 6 comments… read them below or add one }

1 Lani September 4, 2013 at 9:24 am

Totally agree with what you said about the new pods!

Reply

2 Karen September 4, 2013 at 9:58 am

That’s awesome!! It would be interesting to know if that is something that they (Omnipod) had worked to improve on in the new pods. If so…hooray for them and you because you can look forward to continued improved a1c’s!!

Reply

3 Stacey D. September 4, 2013 at 10:37 am

I was always in the same boat. Doing everything I knew to be right, but could not get my A1c below 7%. It used to drive me crazy. Then one time over a year ago it was below 7. I was elated!!! But like you said, wasn’t exactly sure what I did differently to continue! I even thought it was a fluke. But for about a year, I was able to keep it below 7. What I attributed it to was 1) good overnight BG and 2) using a meter that read a bit higher than what I had been using in the past. I know every PWD is different but wanted to share that I’ve been there too. And I do hope that it continues!

Reply

4 Jazmyne September 4, 2013 at 10:52 am

I always feel like my daughter a1c is a grade :/ I woohoo when we get it down. She started at 14.7 and in a few short months we have gotten her down to 7.8 I believe. I don’t think I can help thinking of it as a grade for what I’m trying to do for her. I want to avoid feeling like I’m failing at proper diabetes parenting if at her next endo appt. it goes up. I don’t know how to do that.

Reply

5 Marjorie September 4, 2013 at 7:21 pm

We’re working on the A1C. What are some things that you guys do to help keep that breakfast spike under control? We have a heck of a time with it too.

Reply

6 Tracy September 8, 2013 at 3:52 pm

Our son, age 12, was diagnosed at age 1 1/2. His A1C’s have always been between 7.1-7.6. Think we had an 8.3 one time a few years ago. However, the past two A1C’s have been 6.5% and 6.7% and he has been wearing the Dexcom glucose monitor 24/7. He hates wearing yet another “thing” but for A1C’s this low, I keep bribing him to keep it on 🙂

Reply

Leave a Comment

Previous post:

Next post: