{Our Story} Young Advocate

by Leighann on January 4, 2012

I always say that Q is “loud and proud” about her diabetes and our recent trip to the endo further illustrated what a great diabetes advocate she’s becoming.

Since I would be picking Q up from school at the end of lunch we packed what we needed the night before. I gathered our preparedness kit, which we also use for traveling since it has supplies for any contingency, the clipboard with our log book, and my questions. Q wanted the iPad to play games or watch movies during the 90 minute drive and she put a notebook in her bag.

After our appointment Q asked if she could go talk to a girl that was in the waiting room while I scheduled our next appointment. This is the first time we’ve seen a kid at this office (this is only our second visit and they just added the pediatric endocrinologist to the practice).

When I came over, the girl was putting her supplies back into the lunch box that she uses to carry her supplies. Q said, “Let me organize that for you.” She proceeded to stack everything just so and put it all back in. (Which proves that she’s my child more than you know!)

I told Q that she should show the girl her supply bag and how we have it organized. Q wanted her snack so she tested her blood sugar while I peeled the clementine I had brought for her. (I was thankful that it was 145 since we showing others.) I asked the girl, who uses an insulin pen, if she would like to see how I give Q insulin with a pump.

Look, I’m telling it that Q is having 9 carbs. Look, it did all the math for us. Look, I’m pushing the button to start insulin delivery. Look, it’s giving her insulin right now. Q, do you feel it when you get insulin? No. See, insulin with having an injection.

We explained how the insulin pump works and how for every 15 shots that this girl gets, Q has only one pump change. The mom said she was going to take the CDE up on her offer to teach her more about pumps.

(And I’m not saying that the insulin pump is right for every family or every child, but it has given Q so much more freedom and it’s much easier for us from a caregiver perspective.)

Since we had a long drive home, Q hugged the girl, we said our good bye’s and hit the road. Q wanted breakfast for dinner since that’s our tradition, but there isn’t a Denny’s between the new endo and our town. Instead we stopped at Cracker Barrel (come back Friday to hear THAT story!).

Our waitress saw Q checking her blood sugar (125!) and said that she was recently diagnosed with type 1 diabetes and that her mom was recently diagnosed type 2. She asked about the meter and I told her that it was a pump. She had never heard of the pump before.

We went through our spiel about how it works just as we had earlier in the day. Throughout the meal we chatted off and on with the waitress about diabetes-related things. She said she was going to ask her endocrinologist about the pump because she is having a hard time with her NPH and regular treatment (wild fluctuations in blood sugars).

As we got up from the table, Q hugged our waitress tightly and skipped off to the gift shop.

Just another day in the life of a young diabetes advocate.

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{ 6 comments… read them below or add one }

1 Michelle Ellison-Carlson January 4, 2012 at 8:27 am

Q Rocks! <3

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2 kristina January 4, 2012 at 9:09 am

I agree – Q DOES ROCK! 😉
Go Q go!! 🙂
On a different note … yum – Cracker Barrel! 😉

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3 Sara January 4, 2012 at 10:06 am

Go Q!

And NPH? You have to look long and hard to find people prescribed THAT these days! You know it’s nicknamed the devil’s insulin right?

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4 Johanna B January 4, 2012 at 11:09 am

New to the DOC. Thanks for this post. It gives me hope for the future of diabetes. Q sounds like a real treasure.

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5 Mike Hoskins January 4, 2012 at 11:52 pm

Go, Q! What a great advocate you are! And D-hugs… totally AWESOME!

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6 Sarah Jane January 5, 2012 at 11:55 pm

Doctors are still giving new patients NPH and Regular? I wonder if it is a cost thing… seems ridiculous to me.

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