Newly Diagnosed
Was your child newly diagnosed with Type 1 diabetes?
Resources and links to help get you connected and informed are coming soon.
In the meantime, don’t hesitate to reach out to me by e-mail ( leighann at d-mom dot com) for help, questions, or for a sympathetic ear.
Bag of Hope Program
- Backpack filled with resources
- Includes Rufus the Bear with Diabetes
- Provided by local JDRF chapters
- Request within 3 months of diagnosis
- More information
- My posts about the Bag of Hope and Rufus the Bear with Diabetes
Quilts for Children with Diabetes Program
- Free comfort quilt
- For children 17 years and younger
- No time restriction
- Quilt is free, but they require $12 for shipping and mailing supplies
- Part of the iPump organization
- More information
Use the information provided here at your own risk. Please read the D-Mom Blog disclaimer.
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My 5 year old daughter Kenna was diagnosed 3 weeks ago and we are trying to learn as much as we can.
Tanya, I know I’m a little behind, but my five year old son was diagnosed on December 17th. We kinda in the same place if I’m thinking correctly. How are you doing? We should connect and work through this together at the same pace. My email is amyliz4498@yahoo.com. I have a blog where I’m just journaling the day to day and I’m on facebook and twitter too. I’ve started to meet people and the connections are amazing! We should have a cyber chat!
Hi Tanya,
I’m sorry to hear about your daughter. My son, who is 6 now, was diagnosed at 16 months! It’s not an easy road but know that you are not alone! There is a lot of support out there!
Hello,
My daughter was diagnosed a week and a half ago at 18 months. I have finally come to terms with it, we’ve had a few days to let it sink in. She is doing well. I think she is entering her “honeymoon” phase because all of a sudden her numbers are normal at night. We aren’t sure if it’s from her own pancreas or the Lantus. I just can’t stop thinking about what the environmental trigger was. My husband got Type 1 when he was 7, so we know she was genetically predisposed, but I can’t help but feel guilty something I did caused the trigger. She is so young to develop it!!
hi,
my son Nikolai was diagnosed almost 3 weeks ago.i felt guilty at first but now its like he was never without it. he is 18 months old and im so proud of him. he takes the shots like a champ. i am so grateful for the great information provided on this site. thank you
My son was diagnosed right before Christmas and is 11-years-old. Every day he remembers his life before type 1. He left school for the Christmas break a typical boy and went back after the break with a whole new life. It’s been hard on the whole family but we’re getting there. I guess I thought I would feel so much more confident by now – but I worry so much still.
my ten year old daughter was diagnosed Dec 26th, so we are on the same schedule and similar age. It has been really hard for us. I cried and cried for a few weeks. Now it is getting better but we are facing her first illness and that has been very hard too. She has had pretty high BS the last few days and ketones once.
Is your son interested in other kids with type one. My daughter isn’t. She doesn’t want to talk about it at all or hear about other kids with it.
I know what you mean about coming back from break with a whole new life. That is what happened with us too. She has missed a lot of school from feeling fatigued and having trouble getting going in the mornings. It is frustrating and embarrassing that we can’t get her there on time but we are trying so hard…
My son Jack was diagnosed February 19, 2010. He is 23 months old now, and is a constant inspiration to me. He just hands his finger over, and takes his insulin like it has always been this way. I found your site tonight, and found myself crying, out of (what I think is) happiness to find so many people going through the same thing. I found you because I was trying to research the meter that checks for ketones, because we had a 500 reading out of the blue today, and (of course) they always ask if I checked for ketones- sure, I tore apart another diaper trying to get a reading, because I didn’t have cotton balls in his diaper. Anyway, I am sold, we are getting one ASAP.
Anyway, thank you. I appreciate your site.
Hi Kelly,
Just found this site. My daughter Colleen was diagnosed with T1 on February 18, 2009 at age 10 months. I couldn’t help but notice the coincidence in the diagnosis date and they are very close in age. Colleen turned 2 in April and has had diabetes for 16 months. I can totally relate to all you said in your note – especially the cottonballs in the diaper! We now have a blood ketone checker that makes things much easier. I hope things are going okay for your son – I know how tough it is with a toddler. We put Colleen on the Dexcom CGM in March, and although it’s not an insulin pump, it has definitely made things a little easier. Would be happy to share any information I can with you. Take care! Carrie
Hey there, My 4 year old son Jack was diagnosed 17 days ago. It seems like forever ago. We’re doing well, just taking it one meal at a time. Jack seems to do a little better everyday and we’re adjusting and readjusting to find a dosage that works for him. Tonight my biggest fear is my 6 year old daughter being diagnosed. I know it doesn’t help at all to worry, but worry I do. Thanks for this great blog!
Hi everyone. It is great to see a comment on here as I ran across the blog and havne’t been back since. I web search alot but don’t seem to find the same blogs again unless I link through facebook. We are almost at our six month anniversary and I don’t know how we will handle that (celebrate, ignore, somehow acknowledge?).
Annie, it sounds like you are doing good. I am glad to hear that. I have struggled a lot and continue to struggle. I think everyone is different. My daughter does not have any blood siblings (has an adopted sister), but I have thought about what it must be like to wonder if it will happen again. You can go to diabetestrials.net (or google to find diabetes trials) and they have a study for siblings that checks for antibodies that indicate increased risks. They will also check cousins. Once they are checked and if they are negative, they can follow up yearly for rechecks.
I hope your insulin adjustments go well. We contiually have to adjust and have different meal ratios for every meal, but things are leveling out a bit. We are hoping for a pump soon. I hope you have a good doctor. The best to you and your family.
Thanks for the encouragement Barb! The hospital offered that test, but my understanding was that it was for any kind of aut0-immune disease and the onset could begin next week or in 10 years, so we decided against it. If she is going to get it she’s going to get it, and I want to let her live as long as possible w/o the worry. Does that make sense? We’ll definately be looking for symptoms though. I’ll say a prayer for you guys as you work through all your dosing!