One recent night Q grabbed the book Rufus Comes Home to read together at bedtime. I took the opportunity to talk with her a little about her diagnosis, wondering if she could still remember any of the details or if they were fading away in the three years since.
When we got to the end of the book (I always skip a few of the last sentences because Q doesn’t need to hear about the mother’s burden), I ended with the line about everything being all right.
I asked Q if everything is all right, to which she replied “yes.” But she continued:
I sure hope that Brian gets an insulin pump soon. Then he’d only have to have a shot every three days. And in kid time, three days is a long time!
When Q got an insulin pump, I can’t say we really gave her a choice in the matter. After talking in person with Kerri and Allison over that summer I thought that it was the right choice from a caregiver’s perspective and that it would also give her some more freedom. I was never 100% sure it was the right decision, but I felt like it was the best decision given the knowledge I had at the time.
Seeing a video of Caleb jumping into a swimming pool sealed the deal for me. What freedom!
The week of the saline trial was taxing to say the least. You do twice the work with none of the benefits! If you’ve done a saline trial before, you know what I mean. You have to act as if you are actually using the insulin pump, figuring out boluses and corrections, giving saline as if it was insulin, writing down every single thing to document the week so that the pump trainer or endo can confirm that yes, you are indeed capable of operating the thing…and all the while you are doing double duty because you have to actually give your child injections with real insulin.
Like I said, twice the work, half the fun.
But at the end of the week as I was packing up the PDM and paperwork to send back to the CDE and give her the thumbs up or thumbs down, Q said she wanted to let the nurse know her thoughts too.
Without a doubt I can say that we made the best decision possible for our family and for Q. It’s been over two years on the pump, and though we sometimes have to troubleshoot, change a pod early, or deal with a post-pump change high, it provides so much more freedom.
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